Priority 8 from the Scoliosis PSP

UNCERTAINTY: What forms of postural care are most effective (standing frames, seats, sleep suits & wheelchairs) for managing early onset, neuromuscular and syndromic scoliosis? (JLA PSP Priority 8)
Overall ranking 8
JLA question ID 0059/8
Explanatory note Not available for this PSP
Evidence

Previous related research studies -

Katy Pedlow, Suzanne McDonough, Sheila Lennon, Claire Kerr & Ian Bradbury (2015) Assisted standing for Duchenne muscular dystrophy. Cochrane Neuromuscular Group, The Cochrane Library.

Health Research Classification System category Musculoskeletal
Extra information provided by this PSP
Original uncertainty examples I have some patients with a passively correctable scoliosis. Most wheelchair seats are unable to correct the scoliosis effectively leaving only a moulded wheelchair option with no correction. Is it better to use a chair with slight correction and less support or use a moulded chair which allows for the scoliosis? ~ Is there any advice on good positions to sit and sleep to minimise discomfort? ~ Would children with quadriplegic cerebral palsy benefit from more intensive postural management during early years ~ Can scoliosis affect breathing at night and would the jacket help in sleeping better at night
PSP information
PSP unique ID 0059
PSP name Scoliosis
Total number of uncertainties identified by this PSP. 54 (To see a full list of all uncertainties identified, please see the PSP final report held on the JLA website)
Date of priority setting workshop 4 November 2017