Priority 22 from the Mitochondrial Disease PSP

UNCERTAINTY: How does mitochondrial disease change over time as people get older? (JLA PSP Priority 22)
Overall ranking 22
JLA question ID 0095/22
Explanatory note Not available
Evidence

None identified

Health Research Classification System category Metabolic and Endocrine
Extra information provided by this PSP
Original uncertainty examples Good evidence around prognosis for different conditions and the factors that may influence prognosis ~ Better prediction of prognosis ~ How it affects everything especially the brain and how that can progress ~ Progression with aging. ~ What progression to expect as time goes on ~ How will/ or will my ataxia develop over time?
Submitted by 30 x Patients, 13 x Carers, 11 x Healthcare Professionals
PSP information
PSP unique ID 0095
PSP name Mitochondrial Disease
Total number of uncertainties identified by this PSP. 42 (To see a full list of all uncertainties identified, please see the detailed spreadsheet held on the JLA website)
Date of priority setting workshop 19 January 2020