Epilepsy 2009 priority setting (priority setting in association with the JLA)

About this PSP

In 2009, members of the Wales Epilepsy Research Network collected 398 potential treatment uncertainties from patients, carers and clinicians with experience of epilepsy, via separate focus groups. Participants ranked the questions in terms of importance and these were analysed and grouped into themes.

From this analysis, the Top 12 priorities shared between patients, carers and clinicians were published.


Articles and publications

Epilepsy Top Priorities

These were the top priorities shared by patients, carers and clinicians

  1. Cognitive drug side effects (eg, 'Do different epilepsy medications affect people differently? Are the problems reversible? Are certain people more likely to develop cognitive side effects, and can they be predicted?')
  2. Public awareness (eg, 'What advice should be given to all schools about epilepsy, and how would this improve epilepsy control for schoolchildren? Can better education about epilepsy improve quality of life for people with epilepsy by reducing stigma?')
  3. Mood side effects
  4. Prescribing in pregnancy
  5. Treatment of depression as a comorbidity
  6. Drug withdrawal
  7. Adherence
  8. In utero side effects
  9. Information and self-management
  10. Recognition and acknowledgement of side effects
  11. Management of side effects
  12. Presurgical choices