Pernicious Anaemia PSP Engagement Summary

Gathering uncertainties

Methods used (e.g. survey, focus groups, interviews): Online Survey

	Number	%
Total respondents (across all methods)	933	100
Total patients and carers	921	99
Total health and care professionals	61	1
Total number of original uncertainties submitted	3480	100
Original uncertainties in scope	1324	38
Original uncertainties out of scope	2156	62

Interim prioritisation

Methods used (eg survey, focus groups, interviews): Online Survey

	Number	%
Total number of indicative questions (answered & unanswered)	39	100
Number of verified answered questions	0	0
Number of verified unanswered questions	39	100
Number of verified unanswered questions included in the interim prioritisation	39
Total respondents (across all methods)	1068	100
Total patients and carers	982	92
Total health and care professionals	86	8
Number of questions taken to final workshop	16

Final priority setting workshop

	Number	%
Total participants	24	100
Total patients and carers	12	50
Total health and care professionals	12	50

Notes:

eg please explain if totals do not add up to 100%

Some respondents to the first survey to gather uncertainties fell into more than one category of respondent, but this number was small so did not affect the overall percentages significantly.