Pediatric Inflammatory Bowel Disease (Netherlands) PSP Engagement Summary

  • Published: 20 April 2023
  • Version: V1
  • 1 min read

Gathering uncertainties

Methods used (e.g. survey, focus groups, interviews): survey (both online and hardcopy)

Number %
Total respondents (across all methods) 222 100
Total patients 74 33
Total carers 89 40
Total health and care professionals 59 27
Total number of original uncertainties submitted 763 100
Original uncertainties in scope 660 87
Original uncertainties out of scope 103 13

Interim prioritisation

Methods used (eg survey, focus groups, interviews): Online Survey

Number %
Total number of indicative questions (answered & unanswered) 64 100
Number of verified answered questions 5 8
Number of verified unanswered questions 59 92
Number of verified unanswered questions included in the interim prioritisation 59
Total respondents (across all methods) 263 100
Total patients 70 27
Total carers 127 48
Total health and care professionals 66 25
Number of questions taken to final workshop 25

Final priority setting workshop

Number %
Total participants 30 100
Total patients 10 33
Total carers 12 40
Total health and care professionals 8 27