Congenital Heart Disease PSP Engagement Summary
- Published: 23 November 2022
- Version: V1
- 1 min read
Gathering uncertainties
Methods used (eg, survey, focus groups, interviews): Survey
| Number | % | |
| Total respondents (across all methods) | 524 | 100 |
| Total patients and carers | 387 | 73.9 |
| Total health and care professionals | 135 | 25.8 |
| Total number of original uncertainties submitted | 1370 | 100 |
| Original uncertainties in scope | 1060 | 77.4 |
| Original uncertainties out of scope | 310 | 22.6 |
Interim prioritisation - Child/Antenatal CHD
Methods used (eg, survey, focus groups, interviews: Survey
| Number | % | |
| Total number of indicative questions (answered & unanswered) | 59 | 100 |
| Number of verified answered questions | 3 | 5.1 |
| Number of verified unanswered questions | 56 | 94.9 |
| Number of verified unanswered questions included in the interim prioritisation | 56 | |
| Total respondents (across all methods) | 250 | 100 |
| Total patients and carers | 146 | 58.4 |
| Total health and care professionals | 101 | 40.4 |
| Number of questions taken to final workshop | 26 |
Interim prioritisation - Adult CHD
Methods used (eg, survey, focus groups, interviews: Survey
| Number | % | |
| Total number of indicative questions (answered & unanswered) | 49 | 100 |
| Number of verified answered questions | 2 | 4.1 |
| Number of verified unanswered questions | 47 | 95.9 |
| Number of verified unanswered questions included in the interim prioritisation | 47 | |
| Total respondents (across all methods) | 252 | 100 |
| Total patients and carers | 182 | 72.2 |
| Total health and care professionals | 68 | 27.0 |
| Number of questions taken to final workshop | 26 |
Final priority setting workshop - Child/Antenatal CHD
| Number | % | |
| Total participants | 19 | 100 |
| Total patients and carers | 9 | 47.4 |
| Total healthcare professionals | 10 | 52.6 |
Final priority setting workshop - Adult CHD
| Number | % | |
| Total participants | 20 | 100 |
| Total patients and carers | 9 | 45 |
| Total healthcare professionals | 11 | 55 |
Notes:
One initial survey was carried out, after which, for interim prioritisation, the questions were split into two groups: child/antenatal (n=56) and adult (n=47). Some questions were unique to the groups respectively, others were applicable to both, and were duplicated but worded accordingly.
- Number of questions that were applicable to both groups = 38
- Number of child/antenatal-specific questions = 18
- Number of adult-specific questions = 9
Child/Antenatal CHD
- Total respondents for ‘Gathering uncertainties’ section includes 2 who gave no demographic information.
- Total respondents for interim prioritisation includes 3 charity representatives.
Adult CHD
- Total respondents for ‘Gathering uncertainties’ section includes 2 who gave no demographic information.
- Total respondents for interim prioritisation includes 2 charity representatives.