Children's Cancer PSP Engagement Summary

Gathering uncertainties

Methods used (eg, survey, focus groups, interviews): Online survey with adult survivors of childhood cancer, families, friends and professionals.

	Number	%
Total respondents (across all methods)	488	100
Total patients and carers	340	70
Total health and care professionals	148	30
Total number of original uncertainties submitted	1299	100
Original uncertainties in scope	1160	89
Original uncertainties out of scope	139	11

Methods used (eg, survey, focus groups, interviews): Online surveys with children and young people.

	Number	%
Total respondents (across all methods)	71	100
Total patients and siblings	71	100
Total health and care professionals	N/A	N/A
Total number of original uncertainties submitted	252	100
Original uncertainties in scope	239	95
Original uncertainties out of scope	13	5

Interim prioritisation

Methods used (eg, survey, focus groups, interviews): Online survey with adult survivors of childhood cancer, families, friends and professionals.

	Number	%
Total number of indicative questions (answered & unanswered)	108	100
Number of verified answered questions	4	4
Number of questions which are the focus of ongoing studies	3	3
Number of verified unanswered questions	101	94
Number of verified unanswered questions included in the interim prioritisation	101
Total respondents (across all methods)	327	100
Total patients and carers	237	72
Total health and care professionals	90	28
Number of questions taken to final workshop	23

Priority setting workshop with children and young people

	Number	%
Total participants	8	100
Total patients and siblings	8	100
Total health and care professionals	N/A	N/A

Final priority setting workshop

	Number	%
Total participants	25	100
Total patients and carers	10	40
Total health and care professionals	15	60

Notes:

eg please explain if totals do not add up to 100%

24 summary questions were taken to the children and young people’s workshop which had come from the surveys with children and young people. The workshop participants helped to create seven more summary questions about ‘family, friends, and pets’ as the meaning of the survey submissions on these topics were unclear. Six additional questions were also added which were important to the children and young people attending the workshop and were not already covered by existing summary questions.